Review the ethical, social, and legal issues (ESLI) raised by the Human Genome Project presented in Box 24-2. Prepare a similar list of ESLI questions to apply to the public health databases being developed for health information exchanges. Can you appreciate how these ESLI questions are widely applicable to protecting information gathered from human subjects?

Question

Quizplus · Accepted Answer

The Answer is The ethical, social, and legal issues (ESLI) raised by the Human Genome Project include concerns about privacy and confidentiality of genetic information, potential discrimination based on genetic predispositions, informed consent for genetic testing and research, and the equitable distribution of benefits and burdens of genetic research.

When applying similar ESLI questions to public health databases being developed for health information exchanges, one might consider issues such as the privacy and security of personal health information, the potential for discrimination based on health status, the informed consent process for sharing health information, and the equitable access to and use of health data.

These ESLI questions are widely applicable to protecting information gathered from human subjects because they address fundamental principles of autonomy, privacy, justice, and beneficence. Whether it is genetic information or health data, the ethical, social, and legal considerations remain consistent in ensuring that individuals' rights and well-being are respected and protected. By considering these ESLI questions, researchers and policymakers can work to establish guidelines and regulations that promote the responsible and ethical use of human subject information in research and public health initiatives.

Review the Ethical, Social, and Legal Issues (ESLI) Raised by the Human